porridge…
…is one of the few things I can stomach easily just now (though I am still managing the odd square of medicinal chocolate).
I seem to have have reached the point - yet again - where I need to work out what works for me (and not just in terms of food). It is VERY boring constantly coming up against one’s limits and having to reassess priorities and direction. I so much want to find a consistent level of activity that I can sustain most of the time - a place to hold on to and come back to when need be. Somewhere that feels okay. I don’t want to rule out the possibility of more in time (or less at times) but I want something reasonably stable, sustainable and sustaining. That doesn’t seem so much to want from life.
It feels like I’ve been here many times before…
…..
Currently rereading Timeshifting by Stephan Rechtschaffen.
May 25th, 2005 at 12:51 pm
Hi Michael
Not quite sure how I found your “BLOG” but spent ages last night reading and really wanted to come back this morning ( well it’s now afternoon but my brain has only just started to function )to leave you a message. I am a “BLOG” virgin and admit to not fully understanding exactly what a BLOG was, now I do…..I think. I have enjoyed reading and now I am gonna try and get to grips with sussing out your drawing thingy. From a fellow ME sufferer and avid tea drinker I hope today is a good one for you, take care and keep writing.
May 25th, 2005 at 1:34 pm
Michael, Good news is that I have recently come across a lady of 58 who had M.E. for 11 years, and was bed-bound, and now has been well for over 12 years. This has cheered me up no end, and I am trying some of her superfood recipes at the moment, including a fantastic homemade wheatfree crispbread. I’ve just been into St. Ives to stock up on wholefoods, seeds and sprouters, including millet flakes, which I used to eat as an alternative to porridge, when I was severely allergic to everything except millet, pears, avocadoes and water [when I first got ill]. I had to give up a lot of the good stuff [I was vegan] due to the allergies I developed [anaphylaxis is not nice], and have been disappointed to have to manage without them, but hearing from this lady has given me the bravery to try again. I too am feeling very sick pretty much all the time, and have trouble getting most food to stay down, but figure that to revert to superfoods such as millet and alfalfa would help counteract this. When you’re feeling better, ask me for some recipes, and I’ll let you know how I get on.
May 25th, 2005 at 3:18 pm
Perhaps not whilst your stomach is so out of whack - but have you considered a juicer? You can make some lovely combos and get yourself vitamins and minerals (OK - without the fibre but if you’re lacking an appetite then you work with what you’ve got). One of my colleagues at work (allergy central) swears by hers - even if she doesn’t feel like cooking she can get her juicebook out and whizz something good up. Just watch out for some of the more lurid juice claims - this one (below) seems pretty well balanced
http://www.bupa.co.uk/health_information/html/healthy_living/general/juicing/
May 25th, 2005 at 4:02 pm
Funny cos I’m having trouble with the old digestion to at the moment. Are the planets conspiring to make PWME feel queasy ?
One thing that helps me is to take milk thistle (helps with liver) and drink loads of water —I mean LOADS of water –2 litres in an evening. You pee a lot but thats the idea —- to flush out some of the toxins. even the porridge may be a prob if its with milk. Try soya milk with rice flakes –nearly the same but less ‘toxic’
you could try it — might help
maybe we should all hold virtual hands in a hippy circle and see if we can think oursleves back to digestive health
May 27th, 2005 at 12:06 am
hope you feel better today
May 27th, 2005 at 11:13 pm
Hi Michael! Thanks for your email back. I just know The Beany is gonna be fantastic. I don’t have any health advice for you but wanted to say that I’m hoping for you to feel much better soon. And for you to find that good energy place you can hold on to that you are desiring. That we all desire and no, it isn’t too much to ask for if you ask me. I’m keeping the faith you’ll reach that place and be able to hang onto it.
In the meantime, just be kind to yourself. Rest as much as you need to. Hugs!
May 27th, 2005 at 11:25 pm
Me again. Hey Michael, I was just reviewing your 100 things about me. This one:
>>>59. I find I am better if I eat less sugar and avoid wheat.
Wheat has gluten in it doesn’t it? Have you ever heard of Celiac disease? If you are having a lot of trouble with food..I wonder if you could have Celiac disease which would mean any products you eat containing gluten you’d get very sick. And even lose weight cause you can’t digest them. Its been in the news more around here lately as its a littler known disease but supposedly very common. Just a thought.
May 28th, 2005 at 12:27 pm
get well soon!
i’m currently suffering from an allegy to something or other and cant get the rash to go. It just moves around my body swelling up different bits :/
I’m living on piriton and they make me completely spaced out and mad.
I’m thinking its something i’m eating. Which means i’ll have to go through the cutting out game for the first time soon.
Damnit.
May 31st, 2005 at 1:31 am
Feel better! BTW, I love how the porrige on the package looks.